Puglover1
New member
I learned recently that they removed it to check for cancer ... I'd already had biopsies, clear. Hypoparathyroidism is considered a rare disease, about 50-60K people in the US so most doctors will never have a patient. And local ER drs are clueless, closest endo is in Morris (I don't like her) so a nephrologist orders my outpatient weekly calcium infusions and I take 9 calcium tablets per day. They waaay downplay the 'maybe' thing, CYA, then they set you free to find info from Facebook groups. They did a quality of life 3-year study, way worse than they thought.